Everything seems to be going just fine. I've not been sick and I walked a mile on the treadmill today. Met up with a couple of my friends (stem cell dumping buddies) and I think they are still pissed at me for dumping so many the first day. As they tell me, they were there for all five days. Oh well, ever body is different. I suggested meeting up in SCT lounge for a round of Texas Hold'em. I doubt anyone will show up. The family lounge is really nice. It has a bike and a couple of treadmills, four computers, big screen TV and Lot's of food if you get hungry. Free coffee and I've had a couple of cups tonight.
My doctor came in this morning and was concerned with me being intolerable to the anti-nausea medications. He is thinking I'm really going to need something at some point so he wants to send the Pharmacist up to talk with me. They gave me something very mild and it upset my stomach. He said that I would get the 33 million SC put back into my system and announced that I would be getting Neupogen by IV for 5-7 days to help bring my white count back up faster. He thinks I'm going to do great but is still telling me the rough days are going to be 0-7 for sure.
Keith came up this evening to see me and brought me the much anticipated Ethernet cable so I could gain access to the Internet. He saw me behind the glass wall and was making fun of me. "Look at the monkey...look at the monkey" Ha Ha! Again, thanks for all the comments and I will be posting my blood counts as soon as they come in. Tonight is the first night to draw blood.
Four bags of Buslfin down much more to come.
Breakfast, lunch and dinner was everything I asked for. The food was hot and was really quite tasty. I got a shower and NO water pressure but it did feel good to wash off. Still taking care of my mouth with the rinse and washing. The sponge on a stick and baking soda takes a bit to get use to. It's like you wondering if you have bad breathe but I just drink coffee and say the heck with it.
I hope all is well at church? That is something I really miss. It's like I finally got a strong connection and I had to leave to come up here. Please keep me updated with any new news.
Now that I'm back online it feels good to IM with the kids. I hope that I can keep this up and keep the postings coming. Will update you tomorrow!
Wednesday, February 28, 2007
DAY -9 Hospital Admission
I’m here. Keith brought me up and I ended up in my room early. I made sure to bring my own comforter and pillows. (Thanks Heather Z) The bed has an air mattress on it that inflates/deflates by itself. May take a bit to get use to. The PA came in and gave me a physical and went over my history. I saw Dr. Dean on the elevator and he said he was going to take good care of me. I just ate my dinner meal, which was not bad. One down and how many more to go? My cell phone is working but the Internet connection in my room is not. I may have to take my laptop down the hall in order for me to gain access. The Room has it’s own air filtration system along with a glass door. Not bad. Got my clothes put up and hopefully take a shower here soon. They won’t let you use your own toothbrush for fear of bleeding gums so they give you a sponge on a stick, baking soda and two different kinds of mouthwash. I got all my pictures up and I’m winding down for the night.
9:00 p.m. is when they start my chemo (Busulfin) it runs for two hours and they will give it to me again at 3:00 a.m.. 9:00 a.m. and at 3:00 p.m. for the next several days. Vitals every four hours. I’ve been listening to my itunes, which if I didn’t have that, it would really suck.
56 MILLION STEM CELLS COLLECTED! 33 the first day and 23 the second day which was a ½ bag. They were very impressed! My social worker came in and we talked for a while. She thinks I’m adjusting well for the first day. She said she will check in with me frequently.
Nurse Kim is very nice. She lives in Akron, close to Keith. She went over all the drugs telling me that Busulfin is the one that is not so hard on the system but the other ones (two more) get worse as we go. She too, thinks I’m going to do great. Just hooked be up to a bag of fluids and gave me some Dylantin.
I’ll let you all know how I did through the night and will try to post tomorrow evening.
-9 and counting down to 0.
9:00 p.m. is when they start my chemo (Busulfin) it runs for two hours and they will give it to me again at 3:00 a.m.. 9:00 a.m. and at 3:00 p.m. for the next several days. Vitals every four hours. I’ve been listening to my itunes, which if I didn’t have that, it would really suck.
56 MILLION STEM CELLS COLLECTED! 33 the first day and 23 the second day which was a ½ bag. They were very impressed! My social worker came in and we talked for a while. She thinks I’m adjusting well for the first day. She said she will check in with me frequently.
Nurse Kim is very nice. She lives in Akron, close to Keith. She went over all the drugs telling me that Busulfin is the one that is not so hard on the system but the other ones (two more) get worse as we go. She too, thinks I’m going to do great. Just hooked be up to a bag of fluids and gave me some Dylantin.
I’ll let you all know how I did through the night and will try to post tomorrow evening.
-9 and counting down to 0.
Monday, February 26, 2007
My address at the clinic
I found out what my temporary new address will be:
Alan Stewart
Cleveland Clinic Foundation/M50
9500 Euclid Avenue
Cleveland, OH 44195
Alan Stewart
Cleveland Clinic Foundation/M50
9500 Euclid Avenue
Cleveland, OH 44195
Admission tomorrow for the SCT!
Greetings to all!
We made it to Akron, OH with no problems. The ice storm was a bit north of us. We are getting some snow, but nothing major. My bags are packed and I going to be heading up to the Cleveland Clinic tomorrow around noon for my admission. Please tell your friends to pray for me. The HDlist has been great but I'm just going to post on my blog during this time...and I'm hopeful I will be able to post. Please do let all the people posting on the HDlist know that I'm following their comments and keeping them all in my prayers!
Today I'm having mixed emotions. It's like I'm scared but I'm not. I know that what ever is going to happen while in-house, I will be provided the best of care. It's the side effects and recovery that I think I'm so concerned with currently. It will all work out and I'm going to try to have the best attitude one can have during this transplant. One has to be strong when faced with a challenge. I'm starting at the base of the mountain climb this evening with Keith fixing me a big steak for dinner. They will drive me up tomorrow and we will see how things are going to be. They will start me on the chemo tomorrow afternoon. I will post tomorrow and let you know. Keeping the faith! Feeling the prayers! Placing the ropes for the long climb up!
We made it to Akron, OH with no problems. The ice storm was a bit north of us. We are getting some snow, but nothing major. My bags are packed and I going to be heading up to the Cleveland Clinic tomorrow around noon for my admission. Please tell your friends to pray for me. The HDlist has been great but I'm just going to post on my blog during this time...and I'm hopeful I will be able to post. Please do let all the people posting on the HDlist know that I'm following their comments and keeping them all in my prayers!
Today I'm having mixed emotions. It's like I'm scared but I'm not. I know that what ever is going to happen while in-house, I will be provided the best of care. It's the side effects and recovery that I think I'm so concerned with currently. It will all work out and I'm going to try to have the best attitude one can have during this transplant. One has to be strong when faced with a challenge. I'm starting at the base of the mountain climb this evening with Keith fixing me a big steak for dinner. They will drive me up tomorrow and we will see how things are going to be. They will start me on the chemo tomorrow afternoon. I will post tomorrow and let you know. Keeping the faith! Feeling the prayers! Placing the ropes for the long climb up!
Saturday, February 24, 2007
Heading back to Cleveland for Admission
Well, things seem to be working out with the business. I found a tech and he is really going to give it his best. (I've heard that about six times now). I've been trying to train him for the last couple of days and in my mind we need about three more days for me to feel very comfortable turning him loose, but I'm out of time. So, all I can do is pray that he works out.
Being home has been a HUGE blessing! It has given me the break that I was needing from my "homesick" status. My kids have been great and I got to spend a couple of times with McKenna. She is something else. I was giving her a bath and her facial expressions were like "Where have you been Poppie"? I told her I was going to be gone for another three weeks but i will see her soon and she just smiled at me. Katie and Oliver I sense are troubled with me leaving again but they got it in their minds that it's only another three weeks! Getting admitted on Tuesday but heading back up tomorrow (Sunday) with Keith and his daughter Christi. We have been informed that they are expecting an ICE STORM. So what's new I say! I brought up the frigid cold, the most snow they had at one time and now ICE!
My Pastor is going to tell the congregation how I'm doing and ask for continued prayer for me. He is such a great guy. I do recall my social worker asking me if I wanted a Pastor to visit me on a regular basis while in the hospital and I said for sure.
As for me. I would be lying if I said I wasn't scared but I'm trying so hard to eliminate this unnecessary fears about leaving home, kids, business and throw it all over to Christ. He is the great healer and provider. He will take care of me and my family I know this. I just hope I don't get really sick, sick! It's like you can deal with throwing up but having all the scary side effects (uncertainties) I guess is what's so scary.
Anyway, thanks to all that are following my blog and praying for me. I really feel the prayers!
Being home has been a HUGE blessing! It has given me the break that I was needing from my "homesick" status. My kids have been great and I got to spend a couple of times with McKenna. She is something else. I was giving her a bath and her facial expressions were like "Where have you been Poppie"? I told her I was going to be gone for another three weeks but i will see her soon and she just smiled at me. Katie and Oliver I sense are troubled with me leaving again but they got it in their minds that it's only another three weeks! Getting admitted on Tuesday but heading back up tomorrow (Sunday) with Keith and his daughter Christi. We have been informed that they are expecting an ICE STORM. So what's new I say! I brought up the frigid cold, the most snow they had at one time and now ICE!
My Pastor is going to tell the congregation how I'm doing and ask for continued prayer for me. He is such a great guy. I do recall my social worker asking me if I wanted a Pastor to visit me on a regular basis while in the hospital and I said for sure.
As for me. I would be lying if I said I wasn't scared but I'm trying so hard to eliminate this unnecessary fears about leaving home, kids, business and throw it all over to Christ. He is the great healer and provider. He will take care of me and my family I know this. I just hope I don't get really sick, sick! It's like you can deal with throwing up but having all the scary side effects (uncertainties) I guess is what's so scary.
Anyway, thanks to all that are following my blog and praying for me. I really feel the prayers!
Thursday, February 22, 2007
Continued Stress
I'm really glad to be home but I'm continued to be stressed over the business. My tech that I thought was going to work out decides today that she can't do the job. So, I'm searching for a replacement and for me to do the training in two days is not realistic. It's looking like I'm going to loose a lot of money by not servicing my accounts. Something just isn't right when you train six potential techs and none of them work out!
Again, I tell myself that I have to concentrate on ME. This is what I'm doing but income (my only source) is my business and I guess I'm just scared.
Kids are doing great and we went out to eat again tonight! They want to go see a movie tomorrow night if we can get tickets to see The Astronaut Farmer (I think that's what it's called). My car is still not running as of this afternoon which I hope does not put Keith in a bind tomorrow getting my car and driving it home. This dealership in Akron has just been driving us crazy over repairing this problem.
I'm heading to my local clinic in the AM for a potassium level check. I've been feeling fine flushing the catheter and changing the dressing daily. I'm not looking forward to returning to Cleveland but reality is at hand. I have to kick this cancer out of my system. I WILL DO THIS!!!!!
Oh, one more thing. My friend Bob who owns several quick oil change facilities with his brother Lou told me that Lou passed away and it floored me! He died unexpectedly at the age of 52. It really brought me down and I know Bob is devastated not for just the loss of his brother but losing his best friend as well. Sorry Bobby!
Again, I tell myself that I have to concentrate on ME. This is what I'm doing but income (my only source) is my business and I guess I'm just scared.
Kids are doing great and we went out to eat again tonight! They want to go see a movie tomorrow night if we can get tickets to see The Astronaut Farmer (I think that's what it's called). My car is still not running as of this afternoon which I hope does not put Keith in a bind tomorrow getting my car and driving it home. This dealership in Akron has just been driving us crazy over repairing this problem.
I'm heading to my local clinic in the AM for a potassium level check. I've been feeling fine flushing the catheter and changing the dressing daily. I'm not looking forward to returning to Cleveland but reality is at hand. I have to kick this cancer out of my system. I WILL DO THIS!!!!!
Oh, one more thing. My friend Bob who owns several quick oil change facilities with his brother Lou told me that Lou passed away and it floored me! He died unexpectedly at the age of 52. It really brought me down and I know Bob is devastated not for just the loss of his brother but losing his best friend as well. Sorry Bobby!
Wednesday, February 21, 2007
HOME
I'm home! It felt so good to drive down my driveway. Katie heads out to meet me, hugs me and just starts sobbing. She knows how much I hate being away and I know she missed me dearly. Oliver came over after his Mom got back home from work and he gave me a big hug as well. Mallory brought McKenna by and she just looked at me kinda funny. I took off my hat and she saw my old bald head then she smiled and started kicking her legs. It's a routine when she comes to Poppie's house that we walk around and look at all the antique clocks I have and the way she reacts to a couple of them, I think I might have to make sure I consider those clocks "hers." We played on the floor and I'm certain that she will be crawling the next time I see her. I gave her a bottle and she fell asleep in my arms and I didn't lay her down. Just held her. She is a sweetie! Mallory seems to be a bit preoccupied this evening. Not for sure whats going on but I suspect she is just worried about her old Dad. I tried to reassure her that I was fine. I took the kids out for supper and I told them that the next time I come home I won't be as perky and they understood.
My car was driving me crazy today. I told the dealership that I needed to know as soon as possible if the part they ordered was on the morning truck. The girl at the office calls about 10:00 and tells me it was NOT on the truck. I told her my plight a couple of days ago and I know she was very remorse to tell me the bad news thinking I was going to be delayed another day in Cleveland. I fooled her! I stole Keith's car. Loaded it up and was on the road at 10:30! It was about 5 1/2 hour drive, which was good for me. Keith is going to pick my car up and drive it down Friday to spend some time with his parents. Heading back with him (leaving my car here) on Sunday.
Thanks to all the comments! Eric posted a link to my blog on his blog. I'm glad Heather Z is doing better and to Keith and Cathy~~Words cannot describe how much I appreciate you guys. Thanks! By the way, when I was taking my comforter off the bed this morning, I did find the snake. It's not moved for some time but at least we finally found it! SORRY CONNOR!
My car was driving me crazy today. I told the dealership that I needed to know as soon as possible if the part they ordered was on the morning truck. The girl at the office calls about 10:00 and tells me it was NOT on the truck. I told her my plight a couple of days ago and I know she was very remorse to tell me the bad news thinking I was going to be delayed another day in Cleveland. I fooled her! I stole Keith's car. Loaded it up and was on the road at 10:30! It was about 5 1/2 hour drive, which was good for me. Keith is going to pick my car up and drive it down Friday to spend some time with his parents. Heading back with him (leaving my car here) on Sunday.
Thanks to all the comments! Eric posted a link to my blog on his blog. I'm glad Heather Z is doing better and to Keith and Cathy~~Words cannot describe how much I appreciate you guys. Thanks! By the way, when I was taking my comforter off the bed this morning, I did find the snake. It's not moved for some time but at least we finally found it! SORRY CONNOR!
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